Tillie Mae had spent much of the past year in hospital due to complications caused by her condition, San Filippo Syndrome. It had meant she

Ethan, 5, is bed bound and living with Batten Disease, an extremely rare condition that means he is on oxygen 24/7 and has regular seizures.

12-year-old Trey has undergone significant life changes within the last year, after being taken to hospital with suspected norovirus. After lots of tests and investigations,

Tracey’s cancer diagnosis was unable to quell her real sense of adventure, with a background in scuba diving and being at the helm of many

Lucas is thirteen and lives with Kabuki syndrome, a type 2 chronic lung condition, and epilepsy. He cannot walk or talk, has regular seizures and

Six-year-old Nesrine is dependent on 24-hour oxygen and requires a ventilator to sleep at night. Nesrine’s favourite animal is a giraffe, and her greatest wish